HEARING VOICES NETWORK CYMRU NOTES UPDATE
BARONESS JAMES was invited to be Patron of the HVN
Cymru Group in Oct 03 but unfortunately has had to decline the offer.
Several other candidates are currently potential for this role.
The Manchester National HV Network were informed in
the summer 2002 of the aims of the new Welsh network, particularly its
constitutional remit to address Welsh specific needs, such as the requirement
for HV literature in Welsh as well as English.
HVN 91 Oldham St, Manchester, M4 1LW.
Tel/Fax 0161 834 5768
Hywel Davies. Chairman HVN Cymru.
Upper Robeston, Milford Haven, West Wales, SA73 3TL.
Tel: 01646 692535
Alison Jones. Secretary and co-Treasurer HVN Cymru.
7 Dol Erddi, Waunfawr, Gwynedd, LL55 4AX.
Tel: 01286 650142 Mobile: 07733054463
Alison hopes to obtain help from the Community fund for HVN Cymru.
Karl Krysko. co-treasurer HVN Cymru.
3 Tandderwen, Llanllechid, Rachub, Gwynedd, LL57 3HD.
Tel: 01248 602330.
Montgomeryshire Hearing Voices Group has very
recently set up.
Meets at 'Rekindle'. Mon 1-2 every other week
Steve Cave is a volunteer at the centre, Tel 01686 621266
A latest Scottish HV Newsletter contains tips
for non-voice hearers. HVN Scotland supports free membership for those
interested. (01382 223023). Karl has recently (Oct 03) talked with Pat
Webster at length and asked for membership for the HVN Cymru group.
Pat (now as paid worker) is the founder member. They have a shop and
office and have achieved charitable status, something HVN Cymru needs
to consider soon. They do training and awareness outreach working with
their 20 volunteers, only 3 of whom are non-voicers. There are about
12 HV support groups in Scotland as opposed to about 6 or 7 we know
of in Wales.
Scottish HVN web site is at www.hearingvoicesnetwork.com
Scottish Hearing Voices Network,
c/o Dundee Hearing Voices, The Haven, 213 Hiltown, Dundee, DD3 7AG.
Tel: 01382 223023.
Emergency mobile number 07736790464
There has been some HV research at:
The Centre For Health Research & Evaluation,
Edge Hill, Ormskirk, Lancashire, L39 4QP.
Tel: 01695 584776
Does anyone know anything about them and their work; should we contact
Our HVN Cymru webmaster/designer is
DAVE MORRIS of Brynbella, Bethesda, Gwynedd.
However, the currently incomplete site is being constructed on a private
URL. We have to decide further on its contents, such as Links, HVN Cymru
Constitution, Addresses of Support Groups Wales, etc. Then we need to
decide where it will reside, at its present address or elsewhere on
the web. The URL cannot be given out currently on this general fact
Blaenau Ffestiniog MIND
Tel: 01766 832382 man. Diane Williams
Heather says that as far as she knows they have no HV group
Anglesey Hearing Voices Group
Sue or Peggy were running a group until about March 2001 when
Mike Jackson says he will try and re contact them. The venue was:
MIND, The Priory, Holyhead,
Lorna Thomas in charge of the Centre. Tel 01407 761611
Dr Mike Jackson.
Hergest Unit. Ysbyty Gwynedd. Bangor.
Tel 01248 384384
Mike maintains a keen interest in the subject of Hearing Voices, would
like to see Holyhead group reinstated. He is also keen to see research
projects developed. Karl has exchanged email and now met with Mike.
He would be please to be Mental Health Advisor to HVN Cymru.
Mike would like to meet the Llandudno group early in the new year if
they agree to this.
The Hergest unit are looking at starting a Voices group for the Bangor
He would be pleased to talk at the AGM in N Wales in the spring, perhaps
on the subject of CBT in managing Voices.
A proposal for a research project was discussed that would have a distinct
Welsh specific theme.
Beechwood road, Rhyl, Denbighshire.
Tel 01745 443050
Do we approach the to ask if they have voice hearers in their support
David Lowson of MIND Cymru (Cardiff) emailed
Karl to note there will be a meeting in Caernarfon in December with
a view to starting another NW Wales MIND centre. Karl will attend the
meeting on behalf of HVN Cymru.
Vale Of Clwyd MIND
34 Elwy Street. Rhyl, Denbighshire.
Tel: 01745 336787
Office manager Peter Grey
Voices notice says Hafod Therapy Unit should be contacted for admission
to the group, 01745 443054 is the tel no. given.
Rhyl Hearing Voices.
Peter Murphy, St Wynfrid Centre, 42 Brighton Road, LL18 3HN.
Tel. 01745 336363
Had a well attended group which was restarted about two years ago. It
is currently not operating, though had been found to be very useful
by the participants. He would be very pleased to re contact previous
members and meet up with Karl, etc, in the near future.
Prestatyn Users and Carers.
Tel 01352 718058
Do they have voicers? Should we contact?
Heather Russell HEWS,
Hafal. Nant y Gamar Road. Craig y Don, Llandudno, Conwy, LL30 1YE.
Tel 01492 860926 Wk Mobile: 07812108128
This service aims to complement statutory mental health services by providing
support with a sensitive independent perspective in those who are coping
with the effects of severe mental illness.’
Heather runs the Llandudno HV group, meets every month apart from August
Aberconwy MIND, 3 Trinity Square, Llandudno, Conwy. LL30 2PY.
Tel: 01492 879907.
Swansea Hearing Voices Group. (Starting).
Terry Davies, Cwmbwrla, Heol Y Gros, Swansea, SA5 8LP.
Tel: 01792 632101
Terry is currently doing some homework in the south looking at the HV
situation in other places such as Cardiff, but with a view to seeing a
HV group set up in Swansea.
For HTV Television Community Message Services:
the following is the outline by HVN Cymru Chairman for broadcast sometime
"Voice hearing is the hearing of a voice or voices inaudible
to others. In the Twentyeth Century, voice hearing was traditionally
regarded as a Mental Illness. However, triggered by bereavment, physical
illness, divorce, and accident or some other traumatic event, Voice
Hearing is a relatively common experience.
Hearing Voices Network Cymru aims to raise awareness of Voice Hearing
from a variety of perspectives.If you wish to know more about Voice
Hearing, send a stamped addresed envelope to Hearing Voices Network
Cymru. Thank You."
The announcement has only 30 seconds air space. Karl has the HTV Community
Message Application form, to be returned to
S.A. Hugh. HTV Television Centre Culerhouse Cross, Cardiff. Tel. 029
HVN Cymru Address is currently:
Hearing Voices Network Cymru.
c/o West Wales Action for Mental Health.
124 Main Street.
Tel: 01646 684515
The following Constitution was originally adopted by HVN Cymru
in agreement with other support networks in the UK and as a statement
of intension of the organisation for treasurers account purposes. Its
review is pending, subject to the calling of an AGM of the organisation,
intended for North Wales venue in February or March 2004.
Constitution of the Hearing Voices Network Cymru
To ensure that people who have a voice hearing experience (auditory
hallucinations) are not automatically assumed to be schizophrenic,
but are enabled to explore their experiences with other voice hearers
and are assisted in coming to terms with the phenomena as part of
their life experience.
- To establish a network of people who hear voices and their allies,
in order that they gain a better understanding of the experience.
- To set up self help groups of voice hearers to share experiences
and discuss strategies for coping with voices.·
- To educate society about the meaning of voices to reduce anxiety.
- To develop a range of non-medical ways of assisting people to cope
with their voices
- Provision of, and support to, a Welsh national network of local
voice hearing support groups.
- Commissioning and publication of media designed to inform (as far
as possible bilingually) and support people in Wales who hear voices
and those who support them.
- Provision of training and education to service users and professional
carers in Wales.
- Provision and maintenance of a statutory telephone help line for
members and non-members, in Wales, and operating bilingually.
- Pro-active involvement in statutory services to stimulate alternative
and complimentary models of care and support to people in Wales who
have a voice hearing experience.
- To address Welsh-specific difficulties in obtaining any of these
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